Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex

• Main Authors: Britt A. E. Dhaenens (Author), Sarah A. van Dijk (Author), Laura Fertitta (Author), Walter Taal (Author), Pierre Wolkenstein (Author), Rianne Oostenbrink (Author)
• Format: Bog
• Udgivet: SpringerOpen, 2024-05-01T00:00:00Z.
• Fag: article
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Abstract Background Almost all patients with Neurofibromatosis type 1 (NF1) develop cutaneous neurofibroma (cNF), benign dermal tumours that have a large impact on the patient's Quality of Life (QoL). The French cNF-Skindex is the first questionnaire to specifically assess cNF-related QoL in pa...