A personalized genomic results e-booklet, co-designed and pilot-tested by families

• Main Authors: Julia Handra (Author), Colleen Guimond (Author), Isabel Jordan (Author), Brenda Lenahan (Author), Kelsey Ohs (Author), Rhea Beauchesne (Author), Shelin Adam (Author), Jan M. Friedman (Author), Patricia Birch (Author)
• Format: Book
• Published: Elsevier, 2022-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objective: To develop and evaluate a personalizable genomic results e-booklet that helps families understand their genomic testing results and navigate available resources. Methods: The need for the Genomics Results e-Booklet was identified by families, after which this tool was developed by a team...