A comparison study of outcome measures for epidermolysis bullosa: Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI) and the Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa (iscorEB)Capsule Summary

• Main Authors: Clare L. Rogers, BSc Med (Hons) (Author), Matthew Gibson, MBBS, MMed (Clin Epi) (Author), Johannes S. Kern, MD, PhD, FEBDV, FACD (Author), Linda K. Martin, MBBS (Hons) (Author), Susan J. Robertson, MBBS, FACD (Author), Benjamin S. Daniel, BCom, MBBS, MMed (Clin Epi) (Author), John C. Su, MBBS, MEpi, FRACP, FACD, FAAD (Author), Oliver G.C. Murrell, BA (Author), Grant Feng, BPsych, MDS (Author), Dedee F. Murrell, MA, BMBCh, FAAD, MD, FACD (Author)
• Format: Book
• Published: Elsevier, 2021-03-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: The success of clinical trials in Epidermolysis Bullosa (EB) is dependent upon the availability of a valid and reliable scoring tool that can accurately assess and monitor disease severity. The Epidermolysis Bullosa Disease Activity and Scarring Index (EBDASI) and Instrument for Scoring...