OSTEOGENESIS IMPERFECTA IN CHILDREN IN THE RUSSIAN FEDERATION: RESULTS OF THE FEDERAL REGISTRY AUDIT

• Auteurs principaux: G. T. Yakhyayeva (Auteur), L. S. Namazova-Baranova (Auteur), T. V. Margiyeva (Auteur), O. V. Chumakova (Auteur)
• Format: Livre
• Publié: Union of pediatricians of Russia, 2016-02-01T00:00:00Z.
• Sujets: article
• Accès en ligne: Connect to this object online.

Background: Development and maintenance of registries of patients with rare diseases helps to determine the prevalence thereof, assess quality of medical care rendering, develop possible ways of optimizing patient management and calculate the necessary budget.Objective: Our aim was to study validity...