OSTEOGENESIS IMPERFECTA IN CHILDREN IN THE RUSSIAN FEDERATION: RESULTS OF THE FEDERAL REGISTRY AUDIT

• Główni autorzy: G. T. Yakhyayeva (Autor), L. S. Namazova-Baranova (Autor), T. V. Margiyeva (Autor), O. V. Chumakova (Autor)
• Format: Książka
• Wydane: Union of pediatricians of Russia, 2016-02-01T00:00:00Z.
• Hasła przedmiotowe: article
• Dostęp online: Connect to this object online.

Background: Development and maintenance of registries of patients with rare diseases helps to determine the prevalence thereof, assess quality of medical care rendering, develop possible ways of optimizing patient management and calculate the necessary budget.Objective: Our aim was to study validity...