The Longitudinal Pediatric Data Resource: Facilitating Longitudinal Collection of Health Information to Inform Clinical Care and Guide Newborn Screening Efforts

• Main Authors: Amy Brower (Author), Kee Chan (Author), Michael Hartnett (Author), Jennifer Taylor (Author)
• פורמט: ספר
• יצא לאור: MDPI AG, 2021-06-01T00:00:00Z.
• נושאים: article
• גישה מקוונת: Connect to this object online.

The goal of newborn screening is to improve health outcomes by identifying and treating affected newborns. This manuscript provides an overview of a data tool to facilitate the longitudinal collection of health information on newborns diagnosed with a condition through NBS. The Newborn Screening Tra...