Haemochromatosis patients' research priorities: Towards an improved quality of life

• Main Authors: Lídia Romero‐Cortadellas (Author), Veronica Venturi (Author), Juan Carlos Martín‐Sánchez (Author), Ketil Toska (Author), Dianne Prince (Author), Barbara Butzeck (Author), Graça Porto (Author), Nils Thorm Milman (Author), HI/EFAPH Survey Committee (Author), Mayka Sánchez (Author)
• Format: Book
• Published: Wiley, 2023-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Chronic diseases are associated with a range of functional and psychosocial consequences that can adversely affect patients' quality of life (QoL). Haemochromatosis (HC) is a genetically heterogeneous disorder characterized by chronic iron overload that can ultimately lead t...