'It would be much easier if we were just quiet and disappeared': Parents silenced in the experience of caring for children with rare diseases

Abstract Background Parent experiences of caring for children with neurodevelopmental disease have been silenced and constrained by social, political and health influences. There is a need to co‐construct new meanings and interpretations of parenting a child with complex disabilities by having an in...

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Asıl Yazarlar: Genevieve Currie (Yazar), Joanna Szabo (Yazar)
Materyal Türü: Kitap
Baskı/Yayın Bilgisi: Wiley, 2019-12-01T00:00:00Z.
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3rd Floor Main Library

Detaylı Erişim Bilgileri 3rd Floor Main Library
Yer Numarası: A1234.567
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