Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

Abstract Purpose The International FD/MAS Consortium recently encouraged using the Pediatric Quality of Life Inventory (PEDS-QL) and the Hospital Anxiety and Depression scales (HADS) in clinical care. This study examines scores on these measures among pediatric fibrous dysplasia and McCune Albright...

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Main Author: Amanda Konradi (Author)
Format: Book
Published: SpringerOpen, 2021-04-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
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