Information needs of parents of children with congenital anomalies across Europe: a EUROlinkCAT survey

• Egile Nagusiak: Elena Marcus (Egilea), Anna Latos-Bielenska (Egilea), Anna Jamry-Dziurla (Egilea), Ingeborg Barišić (Egilea), Clara Cavero-Carbonell (Egilea), Elly Den Hond (Egilea), Ester Garne (Egilea), Lucas Genard (Egilea), Ana João Santos (Egilea), LRenée Lutke (Egilea), Carlos Matias Dias (Egilea), Christina Neergaard Pedersen (Egilea), Amanda J. Neville (Egilea), Annika Niemann (Egilea), Ljubica Odak (Egilea), Anna Pierini (Egilea), Juan Rico (Egilea), Anke Rissmann (Egilea), Judith Rankin (Egilea), Joan K. Morris (Egilea)
• Formatua: Liburua
• Argitaratua: BMC, 2022-11-01T00:00:00Z.
• Gaiak: article
• Sarrera elektronikoa: Connect to this object online.

Abstract Background Parents of children who have a congenital anomaly can experience significant worry about their child's health. Access to clear, helpful, and trustworthy information can provide a valuable source of support. In this study the aim was to explore the information needs of parent...