A survey of national and multi-national registries and cohort studies in juvenile idiopathic arthritis: challenges and opportunities

• Main Authors: Timothy Beukelman (Author), Janneke Anink (Author), Lillemor Berntson (Author), Ciaran Duffy (Author), Justine A. Ellis (Author), Mia Glerup (Author), Jaime Guzman (Author), Gerd Horneff (Author), Lianne Kearsley-Fleet (Author), Ariane Klein (Author), Jens Klotsche (Author), Bo Magnusson (Author), Kirsten Minden (Author), Jane E. Munro (Author), Martina Niewerth (Author), Ellen Nordal (Author), Nicolino Ruperto (Author), Maria Jose Santos (Author), Laura E. Schanberg (Author), Wendy Thomson (Author), Lisette van Suijlekom-Smit (Author), Nico Wulffraat (Author), Kimme Hyrich (Author)
• Format: Book
• Published: BMC, 2017-04-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background To characterize the existing national and multi-national registries and cohort studies in juvenile idiopathic arthritis (JIA) and identify differences as well as areas of potential future collaboration. Methods We surveyed investigators from North America, Europe, and Australia a...