Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers' perspectives

• Main Authors: Leigh A. Stubbs (Author), Andrew M. Ferry (Author), Danielle Guffey (Author), Christina Loccke (Author), Erin Moriarty Wade (Author), Pamela Pour (Author), Kaveh Ardalan (Author), Peter Chira (Author), Ingrid M. Ganske (Author), Daniel Glaser (Author), Gloria Higgins (Author), Nadia Luca (Author), Katharine F. Moore (Author), Vidya Sivaraman (Author), Katie Stewart (Author), Natalia Vasquez-Canizares (Author), Raegan D. Hunt (Author), Renata S. Maricevich (Author), Kathryn S. Torok (Author), Suzanne C. Li (Author), Childhood Arthritis, Rheumatology Research Alliance (CARRA) (Author)
• Format: Book
• Published: BMC, 2023-04-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Juvenile localized scleroderma (LS) and systemic sclerosis (SSc) are rare pediatric conditions often associated with severe morbidities. Delays in diagnosis are common, increasing the risk for permanent damage and worse outcomes. This study explored caregiver perspectives on barr...