Public Views About Involvement in Decision-Making on Health Data Sharing, Access, Use and Reuse: The Importance of Trust in Science and Other Institutions

• المؤلفون الرئيسيون: Ngozi Nwebonyi (مؤلف), Susana Silva (مؤلف), Cláudia de Freitas (مؤلف)
• التنسيق: كتاب
• منشور في: Frontiers Media S.A., 2022-05-01T00:00:00Z.
• الموضوعات: article
• الوصول للمادة أونلاين: Connect to this object online.

BackgroundData-intensive and needs-driven research can deliver substantial health benefits. However, concerns with privacy loss, undisclosed surveillance, and discrimination are on the rise due to mounting data breaches. This can undermine the trustworthiness of data processing institutions and redu...