Illness Experiences of Adults with Spina Bifida: Protecting the Whole Self
Summary: Purpose: To understand and describe the illness experiences of adults with spina bifida (SB) which is an incurable birth defect and chronic condition that must be managed throughout life. Methods: A qualitative study using grounded theory was adopted. Data were collected through individual...
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Elsevier,
2021-02-01T00:00:00Z.
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