Spinal muscular atrophy: health related quality of life and burden to parents

• Main Authors: Lucas Sinesio Santos (Author), Vinicius Lopes Silva (Author), Vanessa Ariane Neves (Author), Emmily Santos Ribeiro (Author), Maria Heloyse Martins de Lima Silva (Author), Gabriela Lopes Gama (Author)
• Format: Book
• Published: Hospital de Clínicas de Itajubá, 2022-12-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objective: To analyze the relationship between the quality of life (QoL) of children and adolescents with Spinal Muscular Atrophy (SMA) and the burden on their parents. Methods: A cross-sectional study with 64 parents (53 women) of children and adolescents with SMA was conducted through an online qu...