Patient journey in cystinosis: focus on non-adherence and disease management

• Main Authors: Gema Ariceta (Author), Simón Lalanza (Author), Catalina Peña (Author), Marta Martínez Montero (Author), Carlos Bezos Daleske (Author), Laura Acuña Álvarez (Author), Elisa Giner (Author)
• Format: Book
• Published: BioExcel Publishing Ltd, 2024-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Background: Few studies have assessed patient-reported experience measures in nephropathic cystinosis. This study uses patient reports focused on the impact of cystinosis, cysteamine treatment-associated problems, and therapeutic adherence and suggests potential actions for improvement. Methods: In...