Patient journey in cystinosis: focus on non-adherence and disease management
Background: Few studies have assessed patient-reported experience measures in nephropathic cystinosis. This study uses patient reports focused on the impact of cystinosis, cysteamine treatment-associated problems, and therapeutic adherence and suggests potential actions for improvement. Methods: In...
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| Main Authors: | , , , , , , |
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| Format: | Book |
| Published: |
BioExcel Publishing Ltd,
2024-11-01T00:00:00Z.
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| Online Access: | Connect to this object online. |
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