Health information literacy among children with spinal muscular atrophy and their caregivers

• Үндсэн зохиолчид: Weiran Zhang (Зохиогч), Yijie Feng (Зохиогч), Yue Yan (Зохиогч), Mei Yao (Зохиогч), Feng Gao (Зохиогч), Wei Lin (Зохиогч), Shanshan Mao (Зохиогч)
• Формат: Ном
• Хэвлэсэн: BMC, 2024-08-01T00:00:00Z.
• Нөхцлүүд: article
• Онлайн хандалт: Connect to this object online.

Abstract Background Spinal muscular atrophy (SMA) is an autosomal recessive motor neuron disease that leads to multiple organ dysfunction. The advent of disease-modifying treatments makes the early diagnosis of SMA critical. Health information literacy is vital for obtaining, understanding, screenin...