Health information literacy among children with spinal muscular atrophy and their caregivers

• Main Authors: Weiran Zhang (Author), Yijie Feng (Author), Yue Yan (Author), Mei Yao (Author), Feng Gao (Author), Wei Lin (Author), Shanshan Mao (Author)
• Format: Book
• Published: BMC, 2024-08-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Spinal muscular atrophy (SMA) is an autosomal recessive motor neuron disease that leads to multiple organ dysfunction. The advent of disease-modifying treatments makes the early diagnosis of SMA critical. Health information literacy is vital for obtaining, understanding, screenin...