A qualitative study to understand the Duchenne muscular dystrophy experience from the parent/patient perspective

Abstract Background Duchenne muscular dystrophy (DMD) is a rare, severe, fatal neuromuscular disease characterized by progressive atrophy and muscle weakness, resulting in loss of ambulation, decreased upper body function, and impaired cardiorespiratory function. This study aimed to generate qualita...

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Main Authors: Victoria Brown (Author), Elizabeth Merikle (Author), Kelly Johnston (Author), Katherine Gooch (Author), Ivana Audhya (Author), Linda Lowes (Author)
Format: Book
Published: SpringerOpen, 2023-12-01T00:00:00Z.
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3rd Floor Main Library

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