A qualitative study to understand the Duchenne muscular dystrophy experience from the parent/patient perspective

• Main Authors: Victoria Brown (Author), Elizabeth Merikle (Author), Kelly Johnston (Author), Katherine Gooch (Author), Ivana Audhya (Author), Linda Lowes (Author)
• 格式: 图书
• 出版: SpringerOpen, 2023-12-01T00:00:00Z.
• 主题: article
• 在线阅读: Connect to this object online.

Abstract Background Duchenne muscular dystrophy (DMD) is a rare, severe, fatal neuromuscular disease characterized by progressive atrophy and muscle weakness, resulting in loss of ambulation, decreased upper body function, and impaired cardiorespiratory function. This study aimed to generate qualita...