Content validation and psychometric evaluation of the Angioedema Quality of Life Questionnaire for hereditary angioedema

• Main Authors: Magdalena Vanya (Author), Maureen Watt (Author), Saeid Shahraz (Author), Charlotte E. Kosmas (Author), Stephanie Rhoten (Author), Sara Costa-Cabral (Author), Joan Mendivil (Author), Giovanna Devercelli (Author), Karsten Weller (Author)
• Format: Book
• Published: SpringerOpen, 2023-04-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background There is considerable burden of illness in hereditary angioedema (HAE). However, instruments to assess health-related quality of life (HRQoL) in HAE are limited. The Angioedema Quality of Life Questionnaire (AE-QoL) was developed to measure HRQoL in patients with recurrent angioe...