A national register for surveillance of inherited disorders: b thalassaemia in the United Kingdom

• Main Authors: Modell Bernadette (Author), Khan Maren (Author), Darlison Matthew (Author), King Anita (Author), Layton Mark (Author), Old John (Author), Petrou Mary (Author), Varnavides Lysandros (Author)
• Format: Book
• Published: The World Health Organization, 2001-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

OBJECTIVE: To demonstrate the value of a national register for surveillance of services for an inherited disorder. METHODS: Data from the United Kingdom Thalassaemia Register and the United Kingdom Register of Prenatal Diagnosis for Haemoglobin Disorders were combined in a database; these registers...