Estimating rare disease prevalence and costs in the USA: a cohort study approach using the Healthcare Cost Institute claims data

• Main Authors: Keith A Crandall (Author), Christine M Cutillo (Author), Ainslie Tisdale (Author), Mahdi Baghbanzadeh (Author), Reva L Stidd (Author), Manpreet S Khural (Author), Laurie J Hartman (Author), Jeff Greenberg (Author), Kevin B Zhang (Author), Ali Rahnavard (Author)
• Format: Book
• Published: BMJ Publishing Group, 2024-03-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objective The study capitalised on national insurance claims data to gather information on patient characteristics and associated costs to better understand the diagnosis and treatment of rare diseases (RDs).Materials and methods Data from the Healthcare Cost Institute (HCCI) data enclave were analy...