Work participation in adults with rare genetic diseases - a scoping review

• Main Authors: Gry Velvin (Author), Brede Dammann (Author), Trond Haagensen (Author), Heidi Johansen (Author), Hilde Strømme (Author), Amy Østertun Geirdal (Author), Trine Bathen (Author)
• Format: Book
• Published: BMC, 2023-05-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Work participation is a crucial aspect of health outcome and an important part of life for most people with rare genetic diseases. Despite that work participation is a social determinant of health and seems necessary for understanding health behaviours and quality of life, it is...