Validation of novel patient-centred juvenile idiopathic arthritis-specific patient-reported outcome and experience measures (PROMs/PREMs)

• Main Authors: Laura E. Lunt (Author), Stephanie Shoop-Worrall (Author), Nicola Smith (Author), Gavin Cleary (Author), Janet McDonagh (Author), Andrew D. Smith (Author), Wendy Thomson (Author), Flora McErlane (Author)
• Format: Book
• Published: BMC, 2020-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Measuring the outcomes that matter to children and young people (CYP) with juvenile idiopathic arthritis (JIA), is a necessary precursor to patient-centred improvements in quality of clinical care. We present a two-centre validation of novel JIA patient-reported outcome and exper...