Pediatric epidermolysis bullosa - psychosocial impact and the importance of palliative care based on 5 clinical cases

• Main Authors: Inês Pais-Cunha (Author), Paula Guerra (Author), Alice Porto- (Author), Laura Leite-Almeida (Author), Nuno Gomes (Author), Alberto Mota (Author), Irene Carvalho (Author)
• Format: Book
• Published: Publicaciones Permanyer, 2024-01-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Introduction and Objectives: Epidermolysis bullosa (EB) is a rare genodermatosis caused by pathogenic variants in several genes leading to epithelial fragility with blisters, erosions and ulcerations following minor trauma. Given the affection of any epithelial- lined organ, it can result in several...