A narrative review of the literature on illness uncertainty in hypermobile ehlers-danlos syndrome: implications for research and clinical practice

• Principais autores: Estée C.H. Feldman (Autor), Kendra J. Homan (Autor), Sara E. Williams (Autor), Tracy V. Ting (Autor), Kenneth R. Goldschneider (Autor), Susmita Kashikar-Zuck (Autor)
• Formato: Livro
• Publicado em: BMC, 2023-10-01T00:00:00Z.
• Assuntos: article
• Acesso em linha: Connect to this object online.

Abstract Background Hypermobile Ehlers-Danlos syndrome (hEDS) is characterized by joint and skin laxity, and often accompanied by chronic pain, dysautonomia, increased distress and, functional limitations. The journey to accurate diagnosis is often prolonged due to unclear etiology of symptoms. This...