Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

• Main Authors: Sinclair, Marlene (Author), McCullough, Julie EM (Author), Elliott, David (Author), Latos-Bielenska, Anna (Author), Braz, Paula (Author), Cavero-Carbonell, Clara (Author), Jamry-Dziurla, Anna (Author), João Santos, Ana (Author), Páramo-Rodríguez, Lucía (Author)
• Format: Book
• Published: JMIR Publications, 2019-11-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundUsing social media for research purposes is novel and challenging in terms of recruitment, participant knowledge about the research process, and ethical issues. This paper provides insight into the recruitment of European parents of children with specific congenital anomalies to engage in...