Communication about sudden unexpected death in epilepsy: Understanding the caregiver perspective

• मुख्य लेखकों: Isabella K. Pallotto (लेखक), Renée A. Shellhaas (लेखक), Kayli Maney (लेखक), Madelyn Milazzo (लेखक), Zachary Grinspan (लेखक), Jeffrey Buchhalter (लेखक), Elizabeth J. Donner (लेखक), Gardiner Lapham (लेखक), Thomas Stanton (लेखक), J. Kelly Davis (लेखक), Monica E. Lemmon (लेखक)
• स्वरूप: पुस्तक
• प्रकाशित: Wiley, 2023-03-01T00:00:00Z.
• विषय: article
• ऑनलाइन पहुंच: Connect to this object online.

Abstract Objective We aimed to characterize (1) the caregiver experience of learning about sudden unexpected death in epilepsy (SUDEP), and (2) caregiver preferences for SUDEP risk disclosure. Methods We distributed a 24‐question survey to caregivers of children with epilepsy. Free text questions we...