Costs of UK community care for individuals with recessive dystrophic epidermolysis bullosa: Findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study

• 主要な著者: Eunice Jeffs (著者), Elizabeth Pillay (著者), Lesedi Ledwaba‐Chapman (著者), Alessandra Bisquera (著者), Susan Robertson (著者), John McGrath (著者), Yanzhong Wang (著者), Anna Martinez (著者), Anita Patel (著者), Jemima Mellerio (著者)
• フォーマット: 図書
• 出版事項: Wiley, 2024-02-01T00:00:00Z.
• 主題: article
• オンライン･アクセス: Connect to this object online.

Abstract Background Recessive dystrophic epidermolysis bullosa (RDEB) is a rare inherited skin fragility disorder requiring multidisciplinary management. Information regarding costs of current standard treatment is scant. Objectives As part of a longitudinal natural history study, we explored the co...