Costs of UK community care for individuals with recessive dystrophic epidermolysis bullosa: Findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study

• मुख्य लेखकों: Eunice Jeffs (लेखक), Elizabeth Pillay (लेखक), Lesedi Ledwaba‐Chapman (लेखक), Alessandra Bisquera (लेखक), Susan Robertson (लेखक), John McGrath (लेखक), Yanzhong Wang (लेखक), Anna Martinez (लेखक), Anita Patel (लेखक), Jemima Mellerio (लेखक)
• स्वरूप: पुस्तक
• प्रकाशित: Wiley, 2024-02-01T00:00:00Z.
• विषय: article
• ऑनलाइन पहुंच: Connect to this object online.

Abstract Background Recessive dystrophic epidermolysis bullosa (RDEB) is a rare inherited skin fragility disorder requiring multidisciplinary management. Information regarding costs of current standard treatment is scant. Objectives As part of a longitudinal natural history study, we explored the co...