Costs of UK community care for individuals with recessive dystrophic epidermolysis bullosa: Findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study

• Main Authors: Eunice Jeffs (Author), Elizabeth Pillay (Author), Lesedi Ledwaba‐Chapman (Author), Alessandra Bisquera (Author), Susan Robertson (Author), John McGrath (Author), Yanzhong Wang (Author), Anna Martinez (Author), Anita Patel (Author), Jemima Mellerio (Author)
• Format: Book
• Published: Wiley, 2024-02-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Recessive dystrophic epidermolysis bullosa (RDEB) is a rare inherited skin fragility disorder requiring multidisciplinary management. Information regarding costs of current standard treatment is scant. Objectives As part of a longitudinal natural history study, we explored the co...