Unmet Needs of Parents of Children with Urea Cycle Disorders

Unmet Needs of Parents of Children with Urea Cycle Disorders

(1) Background: Phenotypic diversity and long-term health outcomes of individuals with urea cycle disorders (UCDs) have been described in detail. However, there is limited information on the burden on affected families. (2) Methods: To evaluate the family burden in parents with children suffering fr...

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Main Authors: Mara Scharping (Author), Heiko Brennenstuhl (Author), Sven F. Garbade (Author), Beate Wild (Author), Roland Posset (Author), Matthias Zielonka (Author), Stefan Kölker (Author), Markus W. Haun (Author), Thomas Opladen (Author)
Format: Book
Published: MDPI AG, 2022-05-01T00:00:00Z.
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3rd Floor Main Library

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Call Number: A1234.567
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