Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany

• Main Authors: Ana Babac (Author), Martin Frank (Author), Frédéric Pauer (Author), Svenja Litzkendorf (Author), Daniel Rosenfeldt (Author), Verena Lührs (Author), Lisa Biehl (Author), Tobias Hartz (Author), Holger Storf (Author), Franziska Schauer (Author), Thomas O. F. Wagner (Author), J-Matthias Graf von der Schulenburg (Author)
• Format: Book
• Published: BMC, 2018-02-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Rare diseases are, by definition, very serious and chronic diseases with a high negative impact on quality of life. Approximately 350 million people worldwide live with rare diseases. The resulting high disease burden triggers health information search, but helpful, high-quality,...