Development of the Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities scale
Abstract Background Metachromatic leukodystrophy (MLD) is a rare disease with three forms based on the age at onset of signs and symptoms. The objective of this study was to develop a caregiver-reported clinical outcome assessment that measures impairments in physical functioning related to activiti...
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| Main Authors: | , , , |
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| Format: | Book |
| Published: |
SpringerOpen,
2018-03-01T00:00:00Z.
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| Online Access: | Connect to this object online. |
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