Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach

• Main Authors: Tina Garani-Papadatos (Author), Pantelis Natsiavas (Author), Marcel Meyerheim (Author), Stefan Hoffmann (Author), Christina Karamanidou (Author), Sheila A. Payne (Author)
• Format: Book
• Published: Frontiers Media S.A., 2022-03-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

This paper explores the ethical dimension of the opportunity to offer improved electronic patient-reported outcome (ePRO) systems addressing personal needs of pediatric cancer patients, their parents and caregivers, with regard to technological advance of digital health. This opportunity has been ex...