Challenges of family caregivers of children with special needs of multiple, complex and continuing care at home

• Egile Nagusiak: Beatriz Caroline Dias (Egilea), Sueli MutsumiTsukuda Ichisato (Egilea), Maria Angelica Marchetti (Egilea), Eliane Tatsch Neves (Egilea), Ieda Harumi Higarashi (Egilea), Sonia Silva Marcon (Egilea)
• Formatua: Liburua
• Argitaratua: Universidade Federal do Rio de Janeiro, 2019-01-01T00:00:00Z.
• Gaiak: article
• Sarrera elektronikoa: Connect to this object online.

ABSTRACT Objective: To describe the challenges of family caregivers of children with special needs of multiple, complex and continuing care at home. Methods: Qualitative study based on the theoretical framework of the Patient and Family-Centerd Care (PFCC). We interviewed eleven family caregivers fr...