PROTEA, A Southern African Multicenter Congenital Heart Disease Registry and Biorepository: Rationale, Design, and Initial Results

• Main Authors: Thomas Aldersley (Author), John Lawrenson (Author), Paul Human (Author), Gasnat Shaboodien (Author), Blanche Cupido (Author), George Comitis (Author), Rik De Decker (Author), Barend Fourie (Author), Lenise Swanson (Author), Alexia Joachim (Author), Phaphama Magadla (Author), Malebogo Ngoepe (Author), Liam Swanson (Author), Alistair Revell (Author), Raj Ramesar (Author), Andre Brooks (Author), Nicole Saacks (Author), Bianca De Koning (Author), Karen Sliwa (Author), John Anthony (Author), Ayesha Osman (Author), Bernard Keavney (Author), Liesl Zühlke (Author)
• Format: Book
• Published: Frontiers Media S.A., 2021-10-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Objectives: The PartneRships in cOngeniTal hEart disease (PROTEA) project aims to establish a densely phenotyped and genotyped Congenital Heart Disease (CHD) cohort for southern Africa. This will facilitate research into the epidemiology and genetic determinants of CHD in the region. This paper intr...