Cover Image

Policy Guidance for Direct-to-Consumer Genetic Testing Services: Framework Development Study

BackgroundThe online offer of commercial genetic tests, also called direct-to-consumer genetic tests (DTC-GTs), enables citizens to gain insight into their health and disease risk based on their genetic profiles. DTC-GT offers often consist of a combination of services or aspects, including advertis...

Full description

Saved in:

Bibliographic Details
Main Authors:	Suzanne Maria Onstwedder (Author), Marleen Elizabeth Jansen (Author), Martina Cornelia Cornel (Author), Tessel Rigter (Author)
Format:	Book
Published:	JMIR Publications, 2024-07-01T00:00:00Z.
Subjects:	article
Online Access:	Connect to this object online.
Tags:	Add Tag No Tags, Be the first to tag this record!

Similar Items

LEGAL ASPECTS OF DIRECT-TO-CONSUMER GENETIC TESTS.
by: Mariela Yaneva - Deliverska
Published: (2011)

Review of the Reported Measures of Clinical Validity and Clinical Utility as Arguments for the Implementation of Pharmacogenetic Testing: A Case Study of Statin-Induced Muscle Toxicity
by: Marleen E. Jansen, et al.
Published: (2017)

DPD Testing Before Treatment With Fluoropyrimidines in the Amsterdam UMCs: An Evaluation of Current Pharmacogenetic Practice
by: Forike K. Martens, et al.
Published: (2020)

Sperm donor attitudes and experiences with direct-to-consumer genetic testing
by: Sascha Wodoslawsky, B.A, et al.
Published: (2023)

Rural-urban and racial-ethnic differences in awareness of direct-to-consumer genetic testing
by: Ramzi G. Salloum, et al.
Published: (2018)

Internet-Based Direct-to-Consumer Genetic Testing: A Systematic Review
by: Covolo, Loredana, et al.
Published: (2015)

Pharmacogenetic testing through the direct-to-consumer genetic testing company 23andMe
by: Mengfei Lu, et al.
Published: (2017)

Expanded Neonatal Bloodspot Screening Programmes: An Evaluation Framework to Discuss New Conditions With Stakeholders
by: Marleen E. Jansen, et al.
Published: (2021)

Misuse (and abuse?) of the concept of empowerment: the case of online offer of predictive direct-to-consumer genetic tests
by: Loredana Covolo, et al.
Published: (2012)

Potential pitfalls of reproductive direct-to-consumer testing
by: Frank Z. Stanczyk, Ph.D, et al.
Published: (2022)

Updating the landscape of direct-to-consumer pharmacogenomic testing
by: Filipski KK, et al.
Published: (2017)

Are providers prepared for genomic medicine: interpretation of Direct-to-Consumer genetic testing (DTC-GT) results and genetic self-efficacy by medical professionals
by: Scott P. McGrath, et al.
Published: (2019)

South African HIV self-testing policy and guidance considerations
by: Francois Venter, et al.
Published: (2017)

Genética recreativa: os testes genéticos direct-to-consumer em Portugal
by: Sephora Luyza Marchesini Stival
Published: (2020)

Diet and exercise changes following direct-to-consumer personal genomic testing
by: Daiva Elena Nielsen, et al.
Published: (2017)

Barriers and Facilitating Factors for Implementation of Genetic Services: A Public Health Perspective
by: Martina C. Cornel, et al.
Published: (2017)

Informing the Design of Direct-to-Consumer Interactive Personal Genomics Reports
by: Shaer, Orit, et al.
Published: (2015)

How do health services engage culturally and linguistically diverse consumers? An analysis of consumer engagement frameworks in Australia
by: Ashfaq Chauhan, et al.
Published: (2021)

Research evidence communication for policy-makers: a rapid scoping review on frameworks, guidance and tools, and barriers and facilitators
by: Jorge Otávio Maia Barreto, et al.
Published: (2024)

Development of a Consumer Engagement Framework
by: Lucylynn Lizarondo, et al.
Published: (2016)

Consumers' Use of Web-Based Information and Their Decisions About Multiplex Genetic Susceptibility Testing
by: Kaphingst, Kimberly A, et al.
Published: (2010)

Direct-to-consumer advertising under fire
Published: (2009)

Direct-to-consumer advertising under fire

Affordable innovation: future directions in pharmaceutical policy
by: Suzanne R Hill
Published: (2015)

"I am pregnant and my husband has diabetes. Is there a risk for my child?" A qualitative study of questions asked by email about the role of genetic susceptibility to diabetes
by: Cornel Martina C, et al.
Published: (2010)

Patient preferences for direct-to-consumer telemedicine services: a nationwide survey
by: Brandon M. Welch, et al.
Published: (2017)

Trade Agreements and Direct-to-Consumer Advertising of Pharmaceuticals
by: Deborah Gleeson, et al.
Published: (2018)

Genetically modified animal models of hereditary diseases for testing of gene-directed therapy
by: Anna V. Polikarpova, et al.
Published: (2022)

Evaluation frameworks for digital nursing technologies: analysis, assessment, and guidance. An overview of the literature
by: Tobias Krick
Published: (2021)

Wetlands and Water Framework Directive
Published: (2015)

Wetlands and Water Framework Directive
Published: (2015)

Genetic Testing Consumers in Italy: A Preliminary Investigation of the Socio-Demographic Profile, Health-Related Habits, and Decision Purposes
by: Serena Oliveri, et al.
Published: (2020)

The Legal, Administrative and Managing Framework for Spatial Policy, Planning and Land-Use. Interdependence, Barriers and Directions of Change
Published: (2021)

Women, abortion and the new technical and policy guidance from WHO
by: Mahmoud F Fathalla, et al.
Published: (2012)

Patient Influencers: The Next Frontier in Direct-to-Consumer Pharmaceutical Marketing
by: Erin Willis, et al.
Published: (2022)

Consumer-Directed Health Plans: New Evidence on Spending and Utilization
by: Roger Feldman, et al.
Published: (2007)

Current state and future prospects of direct-to-consumer (DTC) pharmacogenetics
by: Eng Wee eChua, et al.
Published: (2012)

Critical Test of the Beneficial Consequences of Lifting the Ban on Direct-to-Consumer Advertising for Prescription Drugs in Italy: Experimental Exposure and Questionnaire Study
by: Peter Johannes Schulz, et al.
Published: (2023)

The Agile Co-production and Evaluation framework for developing public health interventions, messaging and guidance
by: Lucy Yardley, et al.
Published: (2023)

Framework and Practical Guidance for the Ethical Use of Electronic Methods for Communication With Participants in Medical Research
by: Atsushi Kogetsu, et al.
Published: (2022)