Engagement of patients with scleroderma to revise an internet self-management program

• Main Authors: Janet Poole (Author), Sharon Newbill (Author), Jennifer Serrano (Author), Dana Rosson (Author), Josephine Battyany (Author), Laura Dyas (Author), Luke Evnin (Author), Dennis Raisch (Author), Cynthia Maxwell (Author), Mary Alore (Author), Saville Kellner (Author), Pedro Cuencas (Author), Richard Silver (Author), Dinesh Khanna (Author)
• Format: Book
• Published: The Beryl Institute, 2019-07-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Systemic sclerosis (SSc) or scleroderma is a rare connective tissue disease. Many people do not have access to education programs. A self-management program was developed several years ago based on the literature and input from people with SSc. However, new therapies and treatment options have been...