Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study

BackgroundDiagnostic delay in rare disease (RD) is common, occasionally lasting up to more than 20 years. In attempting to reduce it, diagnostic support tools have been studied extensively. However, social platforms have not yet been used for systematic diagnostic support. This paper illustrates the...

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Main Authors: Kühnle, Lara (Author), Mücke, Urs (Author), Lechner, Werner M (Author), Klawonn, Frank (Author), Grigull, Lorenz (Author)
Format: Book
Published: JMIR Publications, 2020-09-01T00:00:00Z.
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3rd Floor Main Library

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