Evaluation of a Case Management to Support Families With Children Diagnosed With Spinal Muscular Atrophy-Protocol of a Controlled Mixed-Methods Study
Background: Spinal muscular atrophy (SMA) is a rare neuromuscular disease characterized by degeneration of the anterior horn cells in the spinal cord, resulting in muscle atrophy, and proximal muscle weakness. SMA presents with a wide range of symptoms requiring multiple clinical specialists and the...
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| Format: | Book |
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Frontiers Media S.A.,
2021-08-01T00:00:00Z.
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| Call Number: |
A1234.567 |
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| Copy 1 | Available |