Unmet Needs in Darier's Disease from a Patient's Perspective: Lessons Learnt from the German Registry

• Main Authors: Danielle Rogner (Author), Laura Heimerl (Author), Tilo Biedermann (Author), Elke Sattler (Author), Alexander Zink (Author)
• Format: Book
• Published: Medical Journals Sweden, 2024-06-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

The MDHHgermany registry was initiated to characterize the "real-life" situation of affected individuals with Darier's disease (DD; Morbus Darier, MD) and Hailey-Hailey disease (HH), including their treatment and healthcare. To gain deeper insights into medical care of patients with D...