Evaluating case management for caregivers of children with spinal muscular atrophy type I and II-an exploratory, controlled, mixed-methods trial

• Main Authors: Jana Willems (Author), Astrid Pechmann (Author), Sabine Wider (Author), Rita Ambs (Author), Sylvia A. N. Meyer (Author), Isabel Cascante (Author), Joachim Sproß (Author), Annette Mund (Author), Erik Farin-Glattacker (Author), Thorsten Langer (Author)
• Format: Book
• Published: Frontiers Media S.A., 2023-09-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

IntroductionSpinal muscular atrophy (SMA) is a rare neuromuscular disease requiring various clinical specialists and therapists to provide care. Due to the disease's dynamic nature and the long distances between specialized centers and local providers, integrating care between disciplines can b...