Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end‐of‐life

• Main Authors: Shirin Vellani (Author), Marie‐Lee Yous (Author), Vanessa Maradiaga Rivas (Author), Stephanie Lucchese (Author), Julia Kruizinga (Author), Tamara Sussman (Author), Julia Abelson (Author), Noori Akhtar‐Danesh (Author), Gina Bravo (Author), Kevin Brazil (Author), Rebecca Ganann (Author), Sharon Kaasalainen (Author)
• Format: Book
• Published: Wiley, 2024-02-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Background Patient and public involvement (PPI) is a critical priority in research, policy, academia and advocacy organizations. PPI in dementia research is gaining momentum. However, these efforts are missing in international projects aimed at those living with advanced dementia in long‐te...