Caregiver distress: A mixed methods evaluation of the mental health burden of caring for children with bladder exstrophy

• Main Authors: Katelyn A. Spencer (Author), Jaishri Ramji (Author), Pooja Unadkat (Author), Iqra Nadeem (Author), Parth A. Lalakia (Author), Jay Shah (Author), Pramod P. Reddy (Author), Douglas A. Canning (Author), Joao Pippi-Salle (Author), Paul Merguerian (Author), Anjana Kundu (Author), Dana A. Weiss (Author), Aseem R. Shukla (Author), Rakesh Joshi (Author), Jennifer R. Frazier (Author)
• Format: Book
• Published: Frontiers Media S.A., 2022-10-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

IntroductionCaring for children with bladder exstrophy-epispadias complex (BEEC) exacts a long-term emotional toll on caregivers. Previous studies leave a gap in understanding the impact that caring for a child with BEEC has on caregivers in low- and middle-income countries (LMIC). We hypothesize th...