Enhancing Value and Uptake for Whole-Population Cohorts of Children and Parents: Methods to Integrate Registries into the Generation Victoria Cohort

• Main Authors: Valerie Sung (Author), Katrina Williams (Author), Ella Perlow (Author), Yanhong J. Hu (Author), Susannah Ahern (Author), Joanne M. Said (Author), Bill Karanatsios (Author), John L. Hopper (Author), John J. McNeil (Author), Leo Donnan (Author), Sharon Goldfeld (Author), Melissa Wake (Author)
• Formato: Livro
• Publicado em: MDPI AG, 2021-04-01T00:00:00Z.
• Assuntos: article
• Acesso em linha: Connect to this object online.

Health registries are critical to understanding, benchmarking and improving quality of care for specific diseases and conditions, but face hurdles including funding, bias towards clinical rather than population samples, lack of pre-morbid and outcomes data, and absent cross-registry harmonisation an...