Newborn Screening for Cystic Fibrosis: A Qualitative Study of Successes and Challenges from Universal Screening in the United States

• Main Authors: Marci K. Sontag (Author), Joshua I. Miller (Author), Sarah McKasson (Author), Amy Gaviglio (Author), Stacey L. Martiniano (Author), Rhonda West (Author), Marisol Vazquez (Author), Clement L. Ren (Author), Philip M. Farrell (Author), Susanna A. McColley (Author), Yvonne Kellar-Guenther (Author)
• Format: Book
• Published: MDPI AG, 2022-06-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Cystic fibrosis (CF) newborn screening (NBS) was universally adopted in 2009 in the United States. Variations in NBS practices between states may impact the timing of diagnosis and intervention. Quantitative metrics can provide insight into NBS programs (NBSP), but the nuances cannot be elucidated w...