Unmet needs in countries participating in the undiagnosed diseases network international: an international survey considering national health care and economic indicators

• Main Authors: Savino Sciascia (Author), Dario Roccatello (Author), Marco Salvatore (Author), Claudio Carta (Author), Laura L. Cellai (Author), Gianluca Ferrari (Author), Aimè Lumaka (Author), Stephen Groft (Author), Yasemin Alanay (Author), Maleeha Azam (Author), Gareth Baynam (Author), Helene Cederroth (Author), Eva Maria Cutiongco-de la Paz (Author), Vajira Harshadeva Weerabaddana Dissanayake (Author), Roberto Giugliani (Author), Claudia Gonzaga-Jauregui (Author), Dineshani Hettiarachchi (Author), Oleg Kvlividze (Author), Guida Landoure (Author), Prince Makay (Author), Béla Melegh (Author), Ugur Ozbek (Author), Ratna Dua Puri (Author), Vanessa I. Romero (Author), Vinod Scaria (Author), Saumya S. Jamuar (Author), Vorasuk Shotelersuk (Author), William A. Gahl (Author), Samuel A. Wiafe (Author), Olaf Bodamer (Author), Manuel Posada (Author), Domenica Taruscio (Author)
• Format: Book
• Published: Frontiers Media S.A., 2023-09-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

BackgroundPatients, families, the healthcare system, and society as a whole are all significantly impacted by rare diseases (RDs). According to various classifications, there are currently up to 9,000 different rare diseases that have been recognized, and new diseases are discovered every month. Alt...