The Transition to Adulthood for Youth Living with Rare Diseases

More children with rare diseases survive into adulthood. The transition period to adult healthcare presents many challenges for pediatric rare diseases. Few adolescents or their families receive any transitional support for the transition to adult healthcare or for their maturing psychosocial needs....

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Bibliographic Details
Main Authors: Melanie Sandquist (Author), TjaMeika Davenport (Author), Jana Monaco (Author), Maureen E. Lyon (Author)
Format: Book
Published: MDPI AG, 2022-05-01T00:00:00Z.
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3rd Floor Main Library

Holdings details from 3rd Floor Main Library
Call Number: A1234.567
Copy 1 Available