Genetic disease in the family: trajectories and experiences in public health services

• मुख्य लेखकों: Laura Helena Gerber Franciscatto (लेखक), Mara Regina Santos da Silva (लेखक), Alessandro Marques dos Santos (लेखक), Adriane Maria Netto de Oliveira (लेखक), Keterlin Salvador (लेखक)
• स्वरूप: पुस्तक
• प्रकाशित: Universidade Federal do Rio de Janeiro, 2019-10-01T00:00:00Z.
• विषय: article
• ऑनलाइन पहुंच: Connect to this object online.

Abstract Objective: To identify the trajectories and experiences of families of children with genetic diseases in health services. Method: A qualitative study, with data collected through interviews with 15 families and caregivers of children with Genetic Disease, living in the northern region of Ri...