Genetic disease in the family: trajectories and experiences in public health services

• Main Authors: Laura Helena Gerber Franciscatto (Author), Mara Regina Santos da Silva (Author), Alessandro Marques dos Santos (Author), Adriane Maria Netto de Oliveira (Author), Keterlin Salvador (Author)
• Format: Book
• Published: Universidade Federal do Rio de Janeiro, 2019-10-01T00:00:00Z.
• Subjects: article
• Online Access: Connect to this object online.

Abstract Objective: To identify the trajectories and experiences of families of children with genetic diseases in health services. Method: A qualitative study, with data collected through interviews with 15 families and caregivers of children with Genetic Disease, living in the northern region of Ri...