The need of social support, life attitudes and life satisfaction among parents of children suffering from epidermolysis bullosa

• Päätekijät: Dorota Mącik (Tekijä), Monika Kowalska-Dąbrowska (Tekijä)
• Aineistotyyppi: Kirja
• Julkaistu: Termedia Publishing House, 2015-06-01T00:00:00Z.
• Aiheet: article
• Linkit: Connect to this object online.

Introduction. Epidermolysis bullosa (EB) is a group of rare genetic skin disorders. Much is known about the disease from the medical perspective, but there are still only a few studies about the psychological condition of the patient or his family. The birth of a child with EB may become a trauma fo...