The need of social support, life attitudes and life satisfaction among parents of children suffering from epidermolysis bullosa
Introduction. Epidermolysis bullosa (EB) is a group of rare genetic skin disorders. Much is known about the disease from the medical perspective, but there are still only a few studies about the psychological condition of the patient or his family. The birth of a child with EB may become a trauma fo...
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Termedia Publishing House,
2015-06-01T00:00:00Z.
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