Mapping the burden of severe forms of epidermolysis bullosa - Implications for patient managementCapsule Summary

• Main Authors: Jemima E. Mellerio, MD (Author), Dimitra Kiritsi, MD, PhD (Author), M. Peter Marinkovich, MD (Author), Natividad Romero Haro, RN (Author), Kellie Badger, RN (Author), Meena Arora, MSc (Author), Marc A. Dziasko, PhD (Author), Mansi Vithlani, PhD (Author), Anna E. Martinez (Author)
• פורמט: ספר
• יצא לאור: Elsevier, 2023-06-01T00:00:00Z.
• נושאים: article
• גישה מקוונת: Connect to this object online.

Background: The pathophysiological processes underlying the phenotypic spectrum of severe forms of epidermolysis bullosa (EB) are complex and poorly understood. Objective: To use burden mapping to explore relationships between primary pathomechanisms and secondary clinical manifestations in severe f...